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Saturday, November 21, 2009

Our First Trek to Columbus

Nationwide Children's Hospital was....a mess.  The whole thing is under construction, there are NO signs or way of knowing where you are headed, and most frustrating: There are neurology 'department's' on two different levels.  Getting there was a pain, we got lost, and Julian screamed 90% of the time.  Mom took us to this appointment, and tried to help entertain Julian.  We also brought the portable DvD player that Julian got from my mother in law last month.  That only entertained him for 15 min.  He was sick and tired of being in the car for 3 hours to get there, and then when we were, we had to wait for FOUR hours in the waiting room.  He feel alsleep (Thank GOD) on the way home, another 3 hour trip.

We saw the Dr. (literally) for 1 min.  I was VERY irrataited. I took it out a bit on the Nurse, but she seemed to understand and spent 30 minutes with us.  Which I felt we deserved, since we waited 4 hours in the waiting room, and had NO time with the Doctor.  The Muscle Biopsy is scheduled for Dec. 7, a Monday.  We are going to head down the day before and stay in their 'Welcome' Center, because Julian has to be AT the hospital that morning at 6 AM. 

Here are some pictures that I managed to get when he wasn't screaming. Mom was able to get better ones and I'll post them later.


1 comments:

Unknown said...

i will never forget this day~~~it was complicated to say the least~~~the md damn well better be worth his weight in gold for that one single minute julian got!!
i love you and am so very proud of you my jessia~~~~mom