Swallow Study

Today Julian had a swallow study done at Akron Children's Hospital.  

Remember this is our second attempt at this Xray.  The first time, daddy took him back and he wasn't having any of it.  They sent us home after only trying ten minutes that time.

This time, Julian was in an awesome mood (at the point of the day that we were getting the study done anyway lol) and he did really well.  They had him swallow this pudding (he wasn't having that.  Not a big fan of the pudding texture), then a cookie, and two drinks.  He really was amazed at watching the Xray of himself swallowing.  He'd have sat there all day if they would have let him.  

All looked good, so they are moving us on to a feeding team there.  

Back up a couple weeks.... He's been loosing weight so we are back to doing weigh ins every two weeks with his primary pediatrician.  He's at 31 lbs now (gained a few ounces this week).  

10% on the Weight Chart....Then NOT

Today, Julian had a Gastroenterologist appointment at Akron Children's hospital.

For the last year or so Julian has been slowly gaining weight, and growing tall fast (while maintaining his weight).  Today he weighed in two pounds lighter than 4 months ago, and in the past 6 months he has grown almost 3 inches taller.  The GI is a little concerned, only because 'typical' almost five year olds never really loose weight.  Especially when they are getting so much taller.  Two pounds doesn't seem like a lot but when you weight 33 lbs, it's more than you'd think.  So, he wants us to see Dr. Gigax (primary care) every two weeks again for weight checks.  The winter is coming, Julian just started school (today!), and he already has a compromised immune system.  He can't really afford to loose weight.

The GI ordered a swallow study and a meeting (again) with the feeding team at Akron Children's Hospital.  More about that when they call us to set up that appointment.

Julian did awesome (as did Chaeli! ) at school today!  Yay for my big kids!

Julian has also continued to make more sounds, and therefore TRY more sounds, with his speech therapist at Mercy Medical Center.

That's it for this week!