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Wednesday, December 9, 2009

Julian's Muscle Biopsy and First 'Class'

So this Monday was Julian's Muscle Biopsy.  We arrived at the hospital right at 7am, and the took up right back.  Into the gown he went, and we were in a room with a TV, so that helped keep him distracted a bit....for awhile!  He wasn't happy with the nurses checking his vitals and touching him.  The surgeon came in and talked to us, and so did the Anestia Doctor.  He thought that for Julian, it would be best to have some versaid to help calm him down before they take him back.  So a nurse came in about 20 minutes before they took him back and gave the medicine to him.  It took affect in less than 5 minutes!  He couldnt stand on his own, was giggly, and wanted lots of hugs/kisses!  SO cute/funny!  When they wheeled him past where we could go, and I leaned down and gave him a hug, he laughed at me! 

Things turned around!  We went into a waiting room, and the Doctor came out and talked to us about an hour later, said everything went well, and we could see him in about an hour.  So we sat.....and ten minutes later we were paged to head back to his step down room.  We go there, and were told to wait for him, that he'd be in in a few minutes.  A nurse came and said follow her instead, so we went to Julian...appparently he was freaking out too bad for them, and they wanted us to try and calm him.  We got there, and he was SCREAMING, KICKING, and FIGHTING harder than I thought possible.  he WAS NOT happy!  This didn't stop, and so they went ahead and put us, with him, back to the step down room.  THe nurse brought him some sprite, and that didn't really make him happy either.  He wanted to go!  He kept going to our bags,  pointing at his clothes, and then the door! They checked out his vitals some, and let us go in half an hour.  He screamed the whole way to the car, but calmed down soon after we were out of the parking lot.  About an hour after we were on the road, we stopped and got some food, and he ate, and ate and ATE!  We got back in the car and he took about an hour nap.

The wound is worse than I thought.  The made an incision in his Thigh, took a sample of the muscle, and will send it off to be tested.  We won't hear anything for about a month.  He won't be able to bathe in the tub for about a week, and will need a follow up in about a week as well.  He is still limping around and in pain, we are giving him some OTC pain meds.  He is still playing, and Yesterday we started both him and his sister's potty training, and he's absorbed in that right now (WHOLE different blog there already lol!)The pics won't upload, but we have one of his wound up on FackeBook, and the others from the trip to Columbus for the procedure will, hopefully, be up soon!


On to his visit with is teacher/speech therapist today! (pic above) She came at 10 (and has now said that will be every wednesday) to watch him eat.  She wants us to starting giving him one of things, and MAKING  him point to a picture before giving him more (she's going to bring some next wednesday).  Ryan took Chaeli into her room to play (teacher asked) and I stayed in the living room with Julian and his teacher, but out of the way, and didn't interfer.  I wanted to see how he would do.  He ROCKED it!  I was so proud of my baby!  He 'played' with her, and tried to mimic the sounds she was trying to get him to say.  He 'read' the book with her and let her touch his hands to deminstrate some signs.  I was so very proud of him.  He was actually upset when it was time for her to go!  We received our copy of his IEP, and they want him to stay in these 'at home' classes until he is retested in the Spring, then we'll see. 

2 comments:

Jennifer said...

Poor guy!:( Thank goodness he doesn't have to have that done again.

I'm glad the at home class session went well for him. I hope you see lots of progress in the next couple of months.

Jessica said...

I hope so! I really am thinking positive on his home classes!

He's leg got much worse yesterday, it's it's a little better today. His neurologist wants him to be seen and he can't and neither can the surgeon, so Dr. Gigax is tomorrow.